This is a website with information about our son and the genetic condition he has, called alpha mannosidosis and bone marrow transplants, which we chose as a treatment.  It is to share information on our experiences with alpha-mannosidosis, and to help keep our family and friends updated on Luke’s progress.  It is also designed to have information for other families who may find themselves with the same diagnosis, and be looking for information on alpha-mannosidosis and treatments.  Please contact us if you would like to have more information, we’d be happy to talk to you.

Luke was diagnosed with alpha-mannosidosis when he was 5.  He underwent a bone marrow transplant in September 2010, 5 months after being diagnosed.  We believe the Bone marrow transplant has helped treat some of the symptoms of this disorder.